Sherry and Terry’s Resource Page
Welcome to your personalized Cognitive Concierge Resource Page! We appreciate the opportunity to work with you on your individual priorities. This document will be updated to reflect any changes in needs or preferences and we will post all relevant strategies here for easy access. We will notify you when we update your Resource Page.
Your Consultants
Becky Khayum, M.S., CCC-SLP Becky.khayum@mycognitiveconcierge.com
Maureen O’Neil Brown, MS, OTR/L, CBIS Maureen.brown@mycognitiveconcierge.com
http://www.mycognitiveconcierge.com
Office: 331.256.9134
Direct: 773.354.7539
Life Participation Goals and Strategies
Sherry and Terry have identified the following activities as priorities:
- Evening activities at home (besides TV/jigsaw puzzles)
- Golf
- Travel
- Dinner with others
- Finding one of Terry’s friends to visit with him each week
Plan
Maureen and Becky’s To Do List-IN PROCESS
- Maureen will problem solve to help make Medic Alert bracelet easier to use.
- Maureen will look into home video monitoring system options
- Maureen will compile and share information about emergency plan resources, including:
- iPhone apps/widgets
- Medical alert watches/devices
- Home-based medical alert device options for both Canada and US.
- Update Resource Page to include Lorraine’s Long-Term Speech Therapy Plan
Maureen and Becky’s To Do List-COMPLETED
- Maureen will assist with finding plan for workout clothes for sessions with Emily. HOLD FOR NOW-SYSTEM WORKING
- Maureen will assist with finding plan for using workout shoes on treadmill. HOLD FOR NOW-SYSTEM WORKING
- Maureen will research medical alert devices (Canada and US) which will default to call Sherry. ANGELSENSE INFO
- Maureen will compile and share strategies for successful TV remote use to access CNN. DONE
- Our team will give recommendations regarding Terry staying home alone for the three days you will be visiting your daughter at the end of August DONE
- Maureen will research home security device and will compile strategies for successful use of control panels (kitchen and door) to disarm the alarm HOLD FOR NOW- WORKING ON OPERATING SYSTEM
- Maureen will send list of questions and names of agencies who share licensing and inspection reports to vet adult day health programs in Florida-DONE
- Becky will send Sherry contact information for exploring Cognitive Class offerings for Terry-DONE
- Maureen and Becky will offer ideas to form a golf foursome in Bonita Bay at Terry’s club as well as some adaptive golf programs to assist Sherry to make golf outings more consistent and enjoyable-DONE
Sherry and Terry’s To do List-IN PROCESS
- Try using Lorraine’s strategy of looking over menu at home ahead of dinner and writing down choice on slip of paper to assist Terry in ordering in real time
- Use information from Becky and Maureen to try and set up golf outings for Terry in Florida
- Use list of questions and area agencies from Maureen to consider adult day health programs in Florida
- Consider reaching out to Patty Skrivin to investigate next Cognitive Concierge cognitive class on the Milky Way
- Consider joining the National Aphasia Association (NAA) PPA Chats
- Practice reading aloud-Kelly 1x/week, Brittany 1x/week, Sherry-find other ways to practice reading aloud through the week.
- Lorraine will take scripts and write a few suggested responses for Terry on flash cards.
- Try programming home alarm system on phone. If successful, consider updating only one key pad for Margarita; if unsuccessful, let Maureen know-she will research other alarm companies that do not rely on your wifi, as you turn it off when leaving for Florida
- Check out the silicone medic alert bracelet; it may be easier to get on and off independently
- If Terry continues a pattern of leaving the house without telling you where he is going, let your team know and we can work on a way to communicate that information
- Check out Life360 app for tracking Terry’s location; it might be more precise than “Find my Phone”
- Send Maureen a picture of the alarm fob to see how we can help Terry use it successfully
- Try the step-by-step instructions to increase the “dwell time” on the iPhone buttons
- Continue reinforcing Terry’s use of “spoken language “ – even if to keep the” feel and flow” of engagement.
- Terry to be involved in turn taking conversations – where appropriate.
- Continue list of “throw-out” phrases for group conversations
- Have Terry practice reading the names aloud
Sherry and Terry’s To Do List-COMPLETED
- Try using pictures of recycling items to help Terry identify and sort items, an activity he wants to complete to feel helpful-DONE
- Work on creating a picture album of important people with large, easy-to-read labels/short descriptive phrases on Terry’s phone DONE
- Creating Card 1 of 2 “I have Communication Problem/Aphasia “cards: CARD 1-for Emergency; CARD 2-for introduction to a new listener (What is aphasia and how they can help) DONE
- Have large “yes-no” signs in each room. Practice using them for clarification of understanding of conversation. DONE
- Bring a real-life conversation that has been stressful to Lorraine’s session to identify breakdown and tools that might assist DONE
- Bring newspaper with you to Lorraine’s session to see what headlines/stories Terry most enjoys. DONE
- Lorraine recommends having a white board in every room to assist with communication DONE
- Send Becky/Maureen items to include on your Resource Page ONGOING
- Share this Resource Page as you wish with your care team and with friends/family ONGOING
- Continue to use your notebook to document Terry’s doctors’ appointments ONGOING
Speech-Language Therapy Plan
- Partner Training for better conversation:
- Conversation breakdowns (important conversations which end in Terry walking away)
- Lost conversations (Interaction conversations which are light are no issue; Transaction conversations are important and need clarity)
- Tool Box (“Layer One”= YES, NO, MAYBE cards for consistency of responses and verification; “Layer Two”=gestures; animation, voicing/intonation, non-verbal expressions
- More conversation with daughters:
- Phone : helping with scripts for these
- FaceTime: starting to consistently use
- Script training-initiating and responding
- Reading:
- Look at newspaper to see what Terry enjoys most to increase conversation
- “Challenge Silence”:
- Engage Terry and keep the “talk/chat” connection up.
Ongoing evaluation of the 4 COMMUNICATION MODALITIES:
Speaking and writing – messages going OUT
Listening and reading – messages going IN
Terry and Sherry – to understand the barriers APHASIA ‘PPA’ – presents in all 4 of these.
Work with SLP – to look at which of these areas are strengths and weaknesses. This will create GOALS.
Focus is on Partner Training for better Conversation /resolving conversations that require, – detail/decision/planning/.
Long-Term Priorities
- Communication/daily conversations
- Emergency plan for calling 911–will need to consider living in Toronto and Florida
- Success and confidence with working the remote control for TV to watch CNN
- Success and confidence with disarming system in morning
- Increased socialization with friends, which has been challenging as many of Terry’s friends are no longer local
- Writing the “Father of the Bride” speech for daughter’s wedding
Current Functioning
- Walk the dog
- Church
- Going out to meals
- Golf
- Physical trainer (2x/week)
- Outings/shopping
- Jigsaw puzzles
- Visiting museums
- Running errands
- Watching CNN
- Cleans up after dinner (no difficulty)
- Empties dishwasher (occasionally misplaces items)
- Recycles/Disposes of items (confuses bins for trash, recycling and compost)
Family/friends support system
Family
Daughters:
Brittany Hammond 512 552 5955 hammondbrittany@gmail.com
#1428 4323 S. Congress Ave. Austin, TX 78745
Kelly Hammond 479 571 0142. kellyahammond@gmail.com
2706 S. Morlan Ave. Springdale, AR 72764
Mother (Sherry’s) Marty Martin: 765 874 2470 Lynn In
Brother (Sherry’s) Joe Martin: 727 743 6344 or 727 397 8185 home Florida
Brother (Terry’s) Chris Hammond: 780 975 2864 or 780 436 7127 home Edmonton
Other Family/Friends Contacts
Sally Doerge cell: 416 857 0467 or 416 932 3733 Toronto
Susan Orr Mongeau cell: 514 891 4392 or 514 403 4725 Montreal
Jim MetCalfe cell: 416 931 4161 jamesmetcalferealtor@gmail.com. Toronto
Terry’s Friends
Jim MetCalfe, Bill McLean, Jim Mitchell, Kenn LaLonde, Serge Rancourt, Kevin Brady, Ray Mo, Bruce McDonald, Geoff Bowkett, Ian Baillie, Shayne Lipton, Tim O’Conor, Richard Beeby/Liz Seibert, Brad/Mary Arthur
Sherry’s Friends
Sally Doerge, Susan Orr-Mongeau, Leanne Herbert, Luce Veilleux, Marie-Josee Vinet, Lin Stranberg, Terri Spillers, Carolyn Convey, Diksha Dua, Charlie MacIntyre, Barb Wiegand, Lisa Lipton, Liz Seibert, Mary Ramshaw
Care Team
Terence “Terry” Richard Hammond-client cell: 416 258 2682
Sherry Martin – Terry’s wife Cell: 416 569 0534 Home: 1 Sherbourne Street. North, Toronto, ON (Apr – Nov) 416 485 0606 Home: 10404 Yorkstone Drive, Bonita Springs, FL (Nov – Apr) 239 676 5773 sherryamartin72@gmail.com
Dr. Monica Pearl GP Toronto 416 969 3240
Dr. Sandra Black Neurologist 416 6100 ext 85411, 416 480-4551 Sunnybrook Hospital
Dr. Tony Finelli Oncologist 416 946 2851 Princess Margaret Hospital
Dr. Daniel Schachter Dermatologist 416 922-9620
Dr. Martin Sterling Dentist 416 923 8042
Dr. Mira Acs Optometrist 416 966 1955
Lorraine Podolsky, SLP – Speech therapist 416 568 5778
Cognitive Concierge-Becky Khayum, MS, CCC-SLP and Maureen O’Neil Brown, MS, OTR/L, consultants
Medications/Pertinent Medical Information
Primary Progressive Aphasia: Donepezil. 10 MG daily
Telemisartan. 40 MG daily
Rosuvastatin: 10 MG daily
ALLERGIC TO PENICILLIN
Questions for Medical Professionals
We will use this section to prepare for appointments.
Potential Future Needs and Concerns
We can use this section to identify long term priorities.
Support for the Caregiver
Respite and a supportive community assist with preserving mental and physical health of the caregiver. Respite may come in the form of a daily, routine leisure activity in which your loved one will independently engage, a friend or relative who will spend time with your loved one, or a formal community program for engagement. Knowing your loved one is safe and content will allow you take time to care for yourself to complete necessary errands or engage in work or leisure tasks with full attention. Support groups will allow you to find a safe space to discuss common issues, problem solve with others, and create a network of resources.
Sherry’s Caregiver Support Group Memberships:
- Northwestern PPA Group
- Barb Murphy, Sarah Stafford, Linda Hitchens, Jackie Templeton
Research Studies
- Northwestern PPA study
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