Carol and Orrin’s Resource Page

Welcome to your personalized Cognitive Concierge Resource Page! We appreciate the opportunity to work with you on your individual priorities. This document will be updated to reflect any changes in needs or preferences and we will post all relevant strategies here for easy access. We will notify you when we update your Resource Page.

Your Consultants

Becky Khayum, M.S., CCC-SLP Becky.khayum@mycognitiveconcierge.com

Maureen O’Neil Brown, MS, OTR/L, CBIS Maureen.brown@mycognitiveconcierge.com

http://www.mycognitiveconcierge.com

Office: 331.256.9134

Direct: 773.354.7539

Life Participation Goals and Strategies

Carol and Orrin have identified the following activities as priorities:

• Ensure best quality of life for Orrin and Carol
• identify meaningful and organized life participation priorities that will guide supportive services
• Prioritize a consistent weekly schedule for home and leisure activities where Orrin can maintain or increase participation
• Provide guidance and coaching for general communication tools
• Prioritize supports in the home environment and plan for potential future needs
• Engaging Orrin in meaningful activities
• Reduce Orrin’s frustration with communication, especially with remembering names

Plan

Maureen, Becky and Hannah’s To Do List-In Process

1. Email list of questions for upcoming neurology appointment on 10/10/23
2. Email list of questions for upcoming audiology appointment on 10/16/23
3. Send Hearing Loss Resource Kit to Carol, along with suggestions for important pages to review in the packet
4. Add to list of partial weight-bearing activities for Orrin after follow-up visit with MD on 10/1/23
5. Assist as necessary with problem solving Bluetooth headphone connectivity to CD player vs TV
6. Send Carol and Orrin their Resource page link weekly
7. Assist with identifying strategies using association for name recall, especially for greeting neighbors and in preparation for the class reunion in October
8. Research upper body exercise programs
9. Assist with strategies for hearing aid insertion, if necessary
10. Identify and assist in set up of speech therapy services

Maureen, Becky and Hannah’s To Do List-Completed

• Use Central Time Zone for all meeting scheduling
• Meeting summaries/resources should be placed in a Word document so Carol can print and file

Carol and Orrin’s To do list-In Process

1. Hearing aid appointment at the VA hospital on 10/16/23. Orrin is currently not wearing hearing aids as they are being repaired. Please follow-up with the audiologist or hearing aid company to problem-solve the hearing aids’ Bluetooth connectivity on Orrin’s phone
2. Follow-up with orthopedic surgeon- 10/1/23; follow recommendations for activity modification post-surgery
3. Make Plan of Day schedule cards for each day, especially following surgery
4. Ask for PT referral after surgery
5. Please feel free to share your Resource Page with family members to see updates about our meeting discussions and resources

Carol and Orrin’s To do list-Completed

• Follow-up with Northwestern regarding appointment scheduling, including checking on Medicare coverage for visit-Appointment on 1/4/24

Long-Term Priorities

1. Find system to keep paperwork and emails from any medical appointments and other activities organized
2. Assist in developing structured, predictable weekly schedule that provides consistent meaningful activities for Orrin
3. Provide guidance and support in finding a speech therapist and ongoing collaboration with the speech therapist
4. Increase collaboration and communication with health care professionals involved in your care
5. Identify strategies to increase participation/independence in home chores and meaningful leisure activities as well as ways to prevent withdrawal from meaningful activities
6. Research local volunteer opportunities and identify those that may be of interest to Orrin. We can provide education to the staff members at the volunteer center to educate them about aphasia and tips for communicating with Orrin
7. Identify strategies to assist with decreasing frustration/increasing positive mental health
8. Provide general suggestions and coaching to enhance Orrin’s daily communication skills. (Your speech therapists will apply use and practice of these communication tools, in addition to care partner training, during your sessions.)
9. Provide general suggestions to help with comprehension during daily conversations due to hearing loss
10. Assisting with personalization of aphasia/PPA cards that list specific communication tips that may be helpful during conversations with Orrin
11. Education about diagnosis of PPA
12. Identify useful strategies to help increase success and comfort with conversation

Current Functioning

• Foot surgery (8/29/23) to reposition left great toe via pinning, relocate second toe into proper alignment. Currently in walking boot. Follow-up with surgeon is on 10/1/23. Orrin did not receive correct post-surgical instruction and is now non-weight bearing and using knee scooter to get around more easily
• Orrin has always been “a man of action” and enjoys being busy
• Orrin was never known to be a big talker, but of late has become more frustrated with difficulty recalling names, talking on the phone and with conversations in bigger groups. Carol is often with him when he needs to talk. Carol reports that Orrin is always able to get his message across. Carrie has made aphasia cards to give to people to help explain his diagnosis. Carol has made flash cards ahead of social occasions to help Orrin practice names of those whom he might see. Texting takes some increased time
• Orrin drives and loves running errands
• Orrin is able to follow a routine schedule well but becomes anxious with last minute changes
• Carol has taken over the financial responsibilities
• Orrin golfs three times/week
• Orrin goes to visit with his aunt two times a week and then has family dinner with her and the extended family on Sundays at their condo

Family/friends support system

Carrie, daughter

Anne and husband, Tony

Grandsons, 6, 8 and 15 years old, granddaughter

Orrin’s Aunt

Family in Kentucky

Carol’s friend, Jane

Care Team

VA Health Care

Orthopedic surgeon, left foot repair and bilateral knee replacements

Thoeun Se, patient registration specialist, Northwestern Medicine: 312-695-9627

Cognitive Concierge-Becky Khayum, MS, CCC-SLP, Hannah Caron, SLP.D., M.S., CCC-SLP and Maureen O’Neil Brown, MS, OTR/L, consultants

Medications/Pertinent Medical Information

We can add any medication regimen here.

Questions for Medical Professionals

We will use this section to prepare for appointments.

Potential Future Needs and Concerns

We can use this section to identify long term priorities.

Support for the Caregiver

Respite and a supportive community assist with preserving mental and physical health of the caregiver. Respite may come in the form of a daily, routine leisure activity in which your loved one will independently engage, a friend or relative who will spend time with your loved one, or a formal community program for engagement. Knowing your loved one is safe and content will allow you take time to care for yourself to complete necessary errands or engage in work or leisure tasks with full attention. Support groups will allow you to find a safe space to discuss common issues, problem solve with others, and create a network of resources.

 

Support Groups

• National Aphasia Association PPA Chats
• Cognitive Concierge PPA Chats

Research Studies

We will use this section to list information about involvement in medical studies.

Resources and Information

On Grief and Grieving Kübler-Ross, Elisabeth and Kessler, David

The 36 Hour Day Mace, Nancy L. and Rabins, Peter V.